tag:blogger.com,1999:blog-51097789525009612652024-03-05T01:54:51.095-08:00Letters to My Son, ConorUnknownnoreply@blogger.comBlogger14125tag:blogger.com,1999:blog-5109778952500961265.post-57610179168634816832017-02-12T21:00:00.000-08:002017-02-12T21:30:05.935-08:0002.12.17 - Disneyland 2017My Dearest Conor<br />
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My Little Disney Baby. What we week we have had. Let me first start by saying that I am so incredibly proud of you. Your behavior this past week was incredible. Change of routine, new environment... none of that seemed to effect you! Sure, you had a couple little tantrums, but they lasted mere seconds and you picked yourself right back up and regrouped. I think back on this week and all I can say is WOW.<br />
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We left early Tuesday morning and hit the open road. We were lucky to have cousin Content join us again for this trip. I give her shit all the time about traveling everywhere and she is like our family gypsie, but when her husband is a pilot and can get flight privileges anytime she wants, why not take advantage of that? So this was the 2nd time she was able to join us at Disneyland and I am very grateful. Not only was she able to help me with you in certain situations, but we were able to make more great memories. <br />
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We arrived in California Tuesday afternoon and when checking into the hotel, I was surprised to hear that the hotel had upgraded our room. We were upgraded from a standard room to a 2 bedroom suite. Not sure how we got to be so lucky, but again I was grateful.<br />
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So after we got into our room, we unpacked, rested for a bit and HAD to hit the pool. You were soooo excited to see the pool and could not wait to jump in. </div>
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It was soooo cool to just sit in the chairs poolside and relax and watch you swim. The pools were all heated so you were totally comfortable in the water. You listened to the rules when I told you what pool you had to stay in, that you could not run, and the area you were allowed to swim in. Then, before I knew it, you were swimming up to people, mostly adults, but still. Then you met up with this little boy. You two were so incredibly cute together. He would crawl out of the pool and jump back in and you quickly started to follow him around. In this picture below.... OMG... It was soooo cute. You both had crawled out of the pool and jumped back in about 5 or 6 times and you were both tired. This time he had crawled out and you were like "screw that, I am tired" so you stayed in the pool. This little boy reached down and grabbed your hand to help pull you out and as he started to pull up, he jumped in over your head, as to pretend that you had pulled him in. You didn't pull him in, he was just being funny. It was just too cute. You both started laughing and he and his mom, who by this time was sitting poolside too, started laughing as well. Before we knew it, he got out and did it again. Oh Conor... it was sooooo amazing to see you form this bond with this little boy. The other amazing part was the communication. While you played w/ this little boy in the pool, you both were able to find ways to communicate with each other. Then when you were signing more, he picked up on that and then HE started signing more to you. I can't tell you how many times I got a little lump in my throat because I was so proud of you and happy for you. This picture is from one of the times he pretended to pull you up and then jumped in. </div>
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Well, how do you top that pool experience right? Well, you top it by being soooo fricken amazing at both Disney parks, THAT is how you topped that pool experience. We started out on Wednesday over at California Adventures. I was surprised to see your reaction/infatuation with the park map. Not sure if you were actually READING the names of the rides or looking at pictures or both, but regardless you were able to communicate to me what rides you wanted to go on. YOU HAVE NEVER DONE THAT BEFORE! </div>
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<span style="text-align: left;">Somehow you remembered where the Cars ride was and you kept pointing towards Cars Land and then signing car/driving. When you saw it on the map, you pointed to the map. AMAZING!!!!!!!! You were able to communicate that you wanted to go on the Toy Story ride and the carousel. Oh Conor... It was amazing and I was so proud of you. </span></div>
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After we hit what we wanted to over at California Adventures, we headed back to the hotel and hit the pool once again. Yet again, you did awesome as we sat poolside and just watched you swim and play and float and being totally in your element. Once your pool time was over, we headed up and got cleaned up for dinner. Was a slight incident at dinner w/ you throwing your trains over a ledge and cousin Content going to get them (she was generous, I would have left them there) but in your defense, you were BEYOND tired. Up early, day at the park, then swimming... yeah, by the time we got back to the hotel and you had your bath I think you were asleep before your head even hit the pillow. Had to get a good night sleep for DISNEYLAND the next day! </div>
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We woke up early again Thursday morning as we had a reservation for a Character Breakfast at Goofy's Kitchen. You were not as excited as I had hoped you would have been to see Goofy, Dale, Pluto and Minnie Mouse, but you did have fun. </div>
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As far as the food...... Where else but Disneyland and Goofy's Kitchen will you find pizza, chicken nuggets, and ice cream for breakfast??? You of course had pizza and nuggets and were in heaven. :) Good thing that doesn't happen every day. ;) </div>
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After our very filling breakfast, we made our way to the Disneyland park. Made our pit stop at City Hall and got you all signed up for the DAS pass which was yet again beyond helpful. Even as amazing as you did this trip, we would not be able to take these vacations without that DAS pass. For example, the Cars ride when we went had about a 45 minute wait. We still had to wait that time, but just not in line. So when our time was up to ride the ride, we pretty much get to walk on. I think in both parks the most we had to wait was maybe 10 minutes, but you did amazing even for those 10 minutes. Some people complain about that DAS pass, but for you, it has always been perfect.<br />
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Started out over in Tomorrowland. Again, as we waiting for our time you studied the map. You pointed out that you wanted to ride 3 rides and you were very specific. You pointed to the Buzz Lightyear Ride, Star Tours and the Monorail.<br />
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Soooooo as we waited for our Buzz Lightyear time, we headed over and got a Fastpass for Star Tours. Worked out perfectly because as soon as Buzz was over, we only had to kill time for about 10 minutes before we could walk onto Star Tours. THIS is when you demonstrated one of your FEW little tantrums. But again, in your defense, you just didn't understand why you couldn't go on Star Tours and why we were walking away from the ride. The 2 rides are literally right across from each other, so when we got off Buzz and started to walk away from Star Tours (to kill that 10 minute time) you got upset and kept pointing at the Star Tours ride. I tried to explain to you that we were going to go on it, but we had to share and wait out turn. I think he started to finally get it, but not 100% sure.<br />
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After Tomorrowland we hit several other rides and again, you did amazing. I think Buzz Lightyear, Star Tours, the Monorail and It's A Small World were your ultimate favorite.<br />
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We took the Monorail back over to the hotel so you could get a nap. I knew if I didn't get you down for a nap you were not going to make it to the end of the night for fireworks and the Electrical Light Parade. So, we headed back and although it took FOREVER to get you down, you finally fell asleep. My sweet baby boy... <br />
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Once you woke up, we headed back to the Disneyland park. Our goal was to hit the Haunted Mansion, the parade and FINALLY see fireworks. Not once that we have been there have we made it the entire day to watch the fireworks, I was so excited to finally see the fireworks with you. So after we did the Haunted Mansion ride (pic below) we staked out the perfect spot for the parade and fireworks.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcgcSadFeW3-nopOihujI2bGEJtvcxxEWvYk4p7U1Wgpt1ycA9OLuNYUyzWLKg7-WrPnshQK-5xXNYsO51zGyAGGhufg7hbm87kRXPTEplqNesSRVWJqe2i32hjSQxSi_h0P1UqGU69oh-/s1600/16640662_10206714277735058_3396755785756083289_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcgcSadFeW3-nopOihujI2bGEJtvcxxEWvYk4p7U1Wgpt1ycA9OLuNYUyzWLKg7-WrPnshQK-5xXNYsO51zGyAGGhufg7hbm87kRXPTEplqNesSRVWJqe2i32hjSQxSi_h0P1UqGU69oh-/s320/16640662_10206714277735058_3396755785756083289_n.jpg" width="256" /></a><br />
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Unfortunately, buy the time we got to that area, and with all the people, all we could see was the top of the floats. :( I was so bummed. But what we could see, you did get excited.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYqJY_CU99fSMeJpRf_z7ScU9tZjss-D0tYUuS2MmtJ0XE96p6pB6WE6pAYuh_9hyphenhyphenVaFUpPJddyvwQIZzx9tcfhplKxFW-KFRlbf4fEzA7OLlkCYkeyizcPbI3hh5hmsSNzT8UleiqIXr-/s1600/16640889_10206714279415100_8876876147781549206_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYqJY_CU99fSMeJpRf_z7ScU9tZjss-D0tYUuS2MmtJ0XE96p6pB6WE6pAYuh_9hyphenhyphenVaFUpPJddyvwQIZzx9tcfhplKxFW-KFRlbf4fEzA7OLlkCYkeyizcPbI3hh5hmsSNzT8UleiqIXr-/s320/16640889_10206714279415100_8876876147781549206_n.jpg" width="320" /></a><br />
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Once the parade was over, everyone started to trickle out and it cleared up a bit and I was getting more excited for fireworks. Tried to find on our maps and our app on our phone when the fireworks started, we couldn't find it. ONLY TO FIND OUT THERE WERE NO FIREWORKS!!! I was sooo disappointed. It was seriously the first time I was going to be able to sit and watch them and I made a point to do so and they were not having them. I THOUGHT they were held nightly (weather permitting) but evidently they only do them on the weekends now and that change started just a few months ago. UGH!!! I am still mad about that. But... now we know for next time. Sooooooooo we head back to the hotel........ Can I just tell you something?<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoegWsnBcZkQSRVvNDsn-AdwlTZA42LqUyVZWV5aq0t8Fc2wV_qFd4xnosqclp-S-KJbbNHTtdvgcWjRzaVKY59UcnNqIiTSKnZD0x8HwP1PXWpxsvh8bPABbNhSfVnbf7o3U70arpquPj/s1600/16508632_10206714213573454_4078285441982532505_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="179" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoegWsnBcZkQSRVvNDsn-AdwlTZA42LqUyVZWV5aq0t8Fc2wV_qFd4xnosqclp-S-KJbbNHTtdvgcWjRzaVKY59UcnNqIiTSKnZD0x8HwP1PXWpxsvh8bPABbNhSfVnbf7o3U70arpquPj/s320/16508632_10206714213573454_4078285441982532505_n.jpg" width="320" /></a><br />
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Sooo many people all trying to leave the park at the same time and every single one of them were rude. All pushing and cutting in front of people like they were going to shut the gate or something. Walking from the park through Downtown Disney and back to the hotel was just as bad. UGH. I was so frustrated. But again..... YOU my son, did amazing. You even cut a rug with your cousin and did some dancing with your cousin in Downtown Disney! It was so cute. You definitely got your momma's sense of rhythm though, but you were still cute.<br />
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Everything must have an ending and our trip sadly ended on Friday. We packed up our goodies and headed to checkout. As cousin Content lead the charge down the hall, you tagged along behind her and I just had to stop and snap this one last picture. You looked so independent walking down the hallway, carrying your backpack, and your bag of goodies. In that split second it was like you grew up and went from being my little boy, to my little man. This trip I saw a lot, I felt a lot, I learned a lot.<br />
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I will forever be grateful for Get-Away-Today for offering their vacation packages at discounted rates and with a payment plan option. Without that, I would not be able to make these memories with you. We left home on Tuesday and the comfort of knowing our vacation was paid for was such a relief. THEN to have some AMAZING people we know (Nicole, Olivia, Nikole, Becky, Lindsay, Erica, Jarod and Lisa) ambush me with a thank you card and gift cards for our trip. We are beyond lucky Conor to be surrounded by so many amazing people.<br />
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Yes, not going to lie, I am already planning our next Disney trip in my head. Making these memories with you and watching you evolve and grow with each and every trip is something I will cherish forever.<br />
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I love you Monkey.<br />
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All my love forever,<br />
MommyUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-6461903828225485902017-01-15T11:03:00.003-08:002017-01-15T17:31:03.236-08:0001.15.17 - I Vow To Be A Better Mommy in 2017My Dearest Conor<br />
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Hi Monkey. I miss you. You have been at your Daddy's house since yesterday morning. I dropped you off early yesterday so I could get some "cleaning" done here around the house. More on that in a little bit. I just want to let you know that this year I an vowing to be different than 2016. Mommy has been holding onto some emotions, that I know have not been good for me and I am pretty sure have transferred to you in some form or another, but no more Monk! I am hoping this weekend was the start of a new me, a new Mommy. Time will tell.<br />
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Our weekend started out not as I had thought it would have, but life is all about adjustments, I hope you have learned that by now. I took you to Peter Piper Pizza and thought that we were meeting w/ a friend of mine and her kids. When I showed up, I was surprised to find a plethora of people at her table. Totally fine, she was dealing w/ some things and felt she needed her tribe around her, I get that. I respect and understand that. I was just surprised. So you and I went and played some games while she visited w/ her friends. Her kids had such a blast running around and playing with all the other kids and that was awesome to see the smiles on all their faces. But.... Not only was I feeling a little awkward about being one of a million people at the table, there was something else that was bothering me. Reality has a funny way of finding the most inappropriate time to slap you in the face.<br />
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As the adults sat at the table and chatted and socialized, I noticed that all their kids were running around, playing with each other, playing video games, collecting tickets and running back to the table with such excitement on their faces to show their parents that they had collected 20 tickets from a machine! As I was there, just following you around from game to game, making sure you were not pushing your way in front of other kids while they played their game, making sure you were not bolting out the emergency exit at the back of the arcade area. I watched my friend's kids, and her friend's kids run around and play appropriately, while I hovered. Not because I wanted to, but because I needed to. You are not there YET socially where you can go off and play on your own. You can't be given a cup of tokens and be expected to know what to do with them, let alone not push all 20 tokens into one machine when it only needs 1 to play. You kinda of sort of grasp the concept of after you play the game, it spits out a ticket, but you have no understanding of the significance of that ticket or what to do with it other than hand it to me. But you had fun and that is what matters. You love the car racing games like this, that and skee-ball are your two favorite games. I think you like skee-ball more for watching the balls come down the ramp and almost hitting you in the face, but you still like it. It made me happy to see you happy.<br />
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So as the adults had their adult time, you and I had Mommy and Conor time and as disappointed as I was in the lack of adult time I didn't get w/ my friend, I was overjoyed with the amount of Mommy and Conor time I did have. You will get there one of these days Monkey. My first priority though is for you to get to a point where you don't seek out the exits and then where you understand it is appropriate to wait your turn at a game before pushing in front of someone. Understanding tokens and tickets will come, in time.<br />
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So Saturday was really the start of what I knew was going to be a long rough weekend. After I dropped you off at your father's house, I went and picked up a big U-Haul truck. Drove it home and started loading up junk. I went from room to room and closet to closet. I tossed out everything from broken dressers to memories of broken promises. I got rid of 14 bags of clothes and 2 big boxes of toys that I took to Goodwill. The rest.... it ALL got tossed into the big truck and taken to the dump. Can I just tell you something Monkey??? Mommy's body is hurting today!!!<br />
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Tossing all that stuff in the truck and then tossing it back out at the dump is probably the most exercise I have had in a long time (THAT NEEDS TO CHANGE TOO). My knee which I had already hurt a few weeks ago hurts even more today, but it is what it is. It was hard to go through all the memories. Opening drawers and finding things that I had buried both physically and mentally. But it needed to be done. Stuff had been piling up for years, then when your sissy moved out and then your father left, I just didn't want to deal w/ any of it. Then because for the past 4 years, it has just being you and me, I just didn't have time to deal w/ it. So I avoided it all, until this weekend. Even after filling the U-Haul truck, there was still plenty of stuff I could have gotten rid of, but I needed to get to the dump before they closed AND I was already an hour over my reservation time w/ the truck. Then there is the fact that I was just empty. My personal tank was depleted and I had nothing left in me to toss even one more piece of "junk" into that truck. But, I think I did a pretty good job of purging and I am hoping to continue to so a little more here and there over the coming weeks to finally get rid of everything else weighing me down.<br />
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That brings me to today. Today is your sissy's birthday. She is 28 years old today. She never used to like to celebrate her birthday. She always said, every year, "It's just another day" and I would get so upset w/ her. I would tell her "It's NOT just another day. It's the day she came into this world and had that not happened, she would not have been brought into my life, our life." Your sister may not be my child my blood, but she is my child in every way that counts. She was such a great big sister to you when she was here. She loved you so much and was always very protective of you and made you laugh. I hope that wherever she is today, she is somewhere being celebrated by people that make her happy. Today is NOT just another day, today is my daughter's birthday.<br />
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Well. Monk. That pretty much sums up my weekend. I can't wait for you to come home. I think maybe we will have some dinner and then go see a movie. Celebrate your sister's birthday and what I hope to be a happier future for me and for us.<br />
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I love you Monkey.<br />
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All my love forever,<br />
Mommy<br />
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-83150218316873223212016-05-26T06:15:00.001-07:002016-05-26T06:15:30.837-07:0005.26.16 - Graduation Day!<div class="separator" style="clear: both; text-align: center;">
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HAPPY GRADUATION MONKEY!!!</div>
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My Dearest Conor</div>
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I swear it was just yesterday that I drove you to your first day of kindergarten. I pulled away from your school and then had to pull into a parking lot about a block away to wipe the tears. Even then I could not believe you were starting kindergarten, now today I am sitting here again in disbelief that you are graduating kindergarten. </div>
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Conor, I am not going to lie, I was weary about placing you in a school for kids with autism. I was afraid you would not be challenged, then again I was afraid you were going to be challenged too much. I was afraid if I put you in a "special school", you would stay there and never have the opportunity to experience being a student at a public school. As time went on and I witnessed the progress you continued to make, my fears disappeared. I can't tell you exactly when the "Ah Ha" moment happened for me, but I can tell you it was early on. Enrolling you in the Arizona Autism Charter School was one of the best decisions I have made for you. You love the school, you love your teacher and staff and best of all..... you have learned a lot! </div>
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I look back at where you were at the beginning of the year and where you are now and Baby, I could not be any more proud of you. You are learning to read, to write your name, you use your iPad to communicate so much more and your sign language is just amazing. </div>
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Conor I am soooo incredibly proud of you. YOU GRADUATE KINDERGARTEN TODAY!!! Oh the Places You'll Go...... </div>
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I love you Monkey.<br />
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All my love forever,<br />
Mommy<br />
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<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5109778952500961265.post-91470018105985683892015-12-23T21:39:00.001-08:002015-12-23T21:50:07.669-08:0012.23.15 - Stop With All The Positive Stuff!My Dearest Conor,<br />
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Hi Monk.... This is not a letter that I am going to enjoy writing one bit, but I need to get this out.<br />
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"Your child is at risk of autism...."<br />
"Your child is non-verbal...."<br />
"Your child has autism spectrum disorder...."<br />
"Do this therapy and that therapy...."<br />
"Fight for this service and that service...."<br />
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I do everything I am asked to do, and then some. I make my deadlines. I get my paperwork in usually before it's due. I get your evaluations done when I am asked to get them done. I make sure your pick up and drop off schedule from school and therapy is organized. I make sure you have a trustworthy adults (your grandparents) with you at all times when I am not with you, someone whom loves you and knows you and can tend to your special needs. When you have behavior issues (like you have been having lately) I make your lead therapist aware of them ASAP so we can try and nip them in the bud sooner rather than later.<br />
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Conor you are so incredibly smart. You learn and pick up on new things like a pro. I am always hearing hearing how well you are doing, how you are so loving and that your smile is infectious. And as much as I love to hear all these sweet things about you, I really really wish everyone would just stop telling me how cute you are and how adorable you are and how sweet you are. I don't want to hear this right now.<br />
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It not that I "want" to hear all the negative comments, it's that I NEED to hear all negative comments. Not from the people on your Facebook page. They don't interact with you on a daily basis. I am talking about your teachers. Your therapists. Your grandparents. I NEED to hear the negative. I NEED to hear all the things you are not doing that you are supposed to. I NEED to hear all the things you did wrong. Things you refused to do. Things you threw. How many times you kicked the table or how many minutes it took for you to transition from one task to another. I NEED to hear the negative. I NEED to hear what we need to work on. I NEED to hear what is working and what is not working. I NEED someone to be fricken honest with me and tell me "this method of therapy is not working, try this".<br />
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Your behaviors lately are getting more and more unpredictable. Your anger and aggression is starting to concern me. At 65 pounds and your strength increasing, you could quite possibly not only hurt yourself but people around you. I NEED TO HEAR THE NEGATIVE. If people keep blowing smoke up my ass by telling me how cute you are and how much you love me (which I know you do) and avoid telling me all the negative behaviors you had during the day, how am I to know you are having these behaviors so they can be worked on?<br />
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EARLY INTERVENTION IS KEY.... I have said that since day one, but if I assume you had a great day and had no issues, then I assume all is well and there is nothing to focus on (other than the norm). If I am told you kicked the table 10x when you came in from the playground, you hit the wall 10x when you arrived home for speech, or threw a chair 4x before being relaxed enough to complete a task during occupational therapy. I can see a pattern and your lead therapist can see a pattern that you are having issues w/ transitioning from task to task or environment to environment. What is behind this particular type of behavior and having issues w/ transitioning? It's called ANXIETY.<br />
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Conor having anxiety is not fun. I have at times had my issues w/ anxiety and anxiety attacks. I know my anxiety issues and what causes them are much different than your anxiety issues and what causes them, but the fact remain is that ANY anxiety issues are not fun.<br />
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So what can be done? Well, we modify your therapy slightly and put some visual aids in place to TRY and help you to understand things better. Since your anxiety seems to be caused by various types of transitions, we focus on that right now and see if these visual aids can help. Baby you have so many other struggles you deal with on a regular basis, from sensory issues, to communication this fricken anxiety issue was the last thing I needed to hear tonight, but it makes sense. This is why I NEED to hear the negative and stop listening to all the cute comments and the loving comments. These are all thing I already know about you. I know you are beyond cute, I know you are incredibly loving, I know you love me and communicate that to me in your own "Conor Way", but if I am going to help you, I NEED to know everything and that includes the negative.<br />
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I don't mean to knock ANY of the progress you have made, are currently making or will continue to make. Every single little step you take forward is progress and I am over the mood proud of you for it. So incredibly proud Monk, but I NEED to hear the other stuff right now.<br />
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It's 2 days before Christmas and as much as I would like to sit here and tell you a goody goody gumdrop story about how this is going to be an amazing Christmas, it's not going to happen. These last couple weeks have been rough. Between stresses and deadlines at my work, money worries, insurance worries, therapy worries, behaviors issues with you, and some other personal things going on, it is really hard for me to get in to the Christmas mood this year. As you grow up and learn more about me, you will see how me being in this "Ba-Hum-Bug" mood this year, is not the norm for me. But, things happen. There is always next year to look forward to!<br />
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No matter what mood I am in, just know that I AM PROUD OF YOU and I AM PROUD of all the progress you have made over this past year. We still have a long road ahead of us Monk, but if we stay focused on what we need to work on and listen to your oh so wise BCBA, I think we will be fine.<br />
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I love you Monkey.<br />
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All my love forever,<br />
Mommy<br />
<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5109778952500961265.post-1230085905504146232015-12-13T14:20:00.004-08:002015-12-13T14:20:52.750-08:0012.13.15 - Holiday EmotionsMy Dearest Conor<br />
<br />
Hey Baby. I hate long weekends like this when you are at your father's house, but he is bringing you home in a little bit and I will be taking you over to Auntie's house to get a much needed haircut. You gotta look slick for your birthday party next weekend! God I can't believe you are going to be 6 years old. It seems like just yesterday I was stressing about whether or not I was finally going to be pregnant and now I am going to be celebrating your 6th birthday.<br />
<br />
Conor I wish you knew what this season was all about. I wish you understood why everything is all decked out in lights and red and green. I wish you knew why I am so all about traditions like the tree, special ornaments, Santa, baking etc. I can't help but wonder if you will ever understand. I can only dream that one day you will "get it" and one day you will be able to experience and create new traditions with a family of your own. I am well aware that your future is unknown and as much as that scares the living shit out of me, I have to learn to accept the fact that there are just some things out of my control. That is not easy for me to do.<br />
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One thing that is within my control is providing you the best opportunity possible to make a successful and independent future a reality rather than just a dream of mine. Besides making sure that you are in the best school possible for you (no matter how far away it is) and making sure you have the best possible therapy you can get, I am doing everything I can to set you up on some one on one playdates. These play dates are designed to help you with social situations, communication, sharing and so much more. You had your first play date with your friend Jayen last week. I was shocked, and I think your therapists were shocked as well that it went as smooth as it did. You both played trains for a good 30 minutes. You had a snack and ended playing independently in your playroom while you watched one of your favorite "My Baby Can Read" videos. We have another play date set up for this coming Tuesday as well. I am excited we have these opportunities with your friend and also excited that your therapists are going to be there to supervise, take data and help prompt here and there. This not only is a good opportunity for you, but also your friend Jayen. Jayen has autism, but he also has epilepsy. He is an amazing kid and is delayed just like you. Although his speech and communication is more advanced than yours you both still have your special ways of communicating. I love seeing you too play together. I warms my heart.<br />
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Conor, I need to sign off here so I can go take a shower. You will be home soon and we are going to go get your haircut, get some dinner and then check out some Christmas lights! But I do want to take a quick second to apologize to you first. I know Mommy has been somewhat of an emotional wreck the last couple weeks. You have had some changes in routine (yet again) and are doing the very best you can to cope with those changes. I have also been doing my best to cope with your changes, your new behaviors and so much more. I am sorry if I am sad sometimes, I know you don't understand this emotion yet and it's time like this that I am VERY grateful for that, but I still feel the need to apologize. I have been under a lot of stress lately and there is a lot going on during this time of year in general. Top the seasonal changes off, I am really missing your sister lately (as of today, it has been 995 days since we have last seen her), there are things going on at work, decisions about our future that need to be made and memories that just keep popping up here and there. Needless to say it is just an emotional time of year for me. For some reason, this year seems to be more emotional. Just know I am doing my best to be "present" and I will ALWAYS be here for you. I love you so much Monkey.<br />
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All my love forever,<br />
Mommy<br />
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-28057152848836042002015-11-25T00:30:00.000-08:002015-12-13T14:22:43.444-08:0011.25.15 - Be Grateful My Dearest Conor,<br />
<br />
As we start off Thanksgiving Eve, I thought I would start off by telling you a few things that I am grateful this year. First and foremost, I am grateful for you, my son. You are my everything. I hope, no matter what happens, you will always know this.<br />
<br />
I am grateful for your grandma and grandpa Mallory and Thompson. Without their help, I would not be able to do everything I do.<br />
<br />
I am grateful for your AMAZING therapy team (Pam, Lindsay, Lisa, Mandi, Mackenzie and Samantha). You have come so far with the help of these amazing people. I look forward to seeing how much more you progress with the addition of your two newest therapists.<br />
<br />
I am grateful for your school, your teachers, and your aides. Again, the progress you have shown is everything I had hoped for.<br />
<br />
I am grateful for my AMAZING Boss and grateful that I have a job I love.<br />
<br />
I am grateful for friends, old and new. Friends I am growing to trust. Friends who I am hoping I will be count on in the near future, because I am going to really need them.<br />
<br />
I am grateful for family members who say "Yes" on those rare occasions to actually do ask for help.<br />
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Oh Conor.... Another year is almost over and another year goes by where you are not talking. But you are really close. You can almost say "mom" and I look forward to the day that you can look into my eyes and say "I love you." <br />
<br />
All my love forever<br />
Mommy <br />
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-48470436852381948562015-10-26T03:04:00.001-07:002015-10-26T03:04:29.118-07:0010.26.15 - An Emotional Day<p dir="ltr">My Dearest Conor, </p>
<p dir="ltr">It's 230 in the morning and you have just woken and crawled into bed with me. I was awake, watching you in the monitor, toss and turn, knowing that it wouldn't be long before you were in here. Not sure why I was awake, just a lot on my mind I guess. </p>
<p dir="ltr">This past weekend was your walk weekend. You were not there. I was, and not having you there was very hard. I saw lots of familiar faces, every single one of which asked me "Where's Conor?" You are so incredibly loved Monkey. But yeah, just being there in general was emotional, but the fact that you were not there made it even more emotional. </p>
<p dir="ltr">Soooo many people were at the walk. An estimated 22,000 to 25,000 people to be exact. 1.4 million dollars were raised, 1/2 of which is guaranteed to stay here in our state to benefit SARRC and even more money available to stay with local grants.</p>
<p dir="ltr">I was also the official photographer again this year and had some amazing people helping me. Andy (your future father in law) helped again, then there were two new friends of ours Christine and Shannon. Shannon is Gavin's mommy from Buddy Baseball. And then there was Dana who flew across the country just for the walk and to help me and support you. I don't know what I would do without Dana, Monk. She helped Mommy a lot this weekend and not just with the walk. She kinda put Mommy in her place and told her to stop being dumb. On top of being schooled by Dana, we got to see Jamie and Victor and Aunt Cookie and Uncle Dodie and best of all.... You got to play with Mateo twice and also last night when Caleb and Isaiah were there. It was very clear just how much you missed them all. You flapped your hands so much from excitement I thought a couple times there you were going to get some air and start flying around the room. I think it was made clear too to Dana and Jamie moving to Jersey was a mistake. I see them moving back here before next summer, if not sooner. </p>
<p dir="ltr">Then on Saturday, we went over to Jayen's house where Nicole cooked breakfast and you played, mostly on the stairs, but you played. Nicole made this huge spread, it looked like something out of a Foodie Magazine. I was having some issues just before we got there and was just a bundle of nerves so I wasn't really in the mood for food, but I did take a little of each of her dishes and it tasted even better than it looked. Nicole really did a great job and it was an honor to be there. </p>
<p dir="ltr">Well Monkey. It's now 3am and I guess I should wrap this letter up and make another attempt at sleep. I just wish I could just stop thinking long enough for my brain to go into sleep mode, it's not easy. Been a rough weekend and it's only going to get rougher, but I will get through it. I will find a way Monkey. </p>
<p dir="ltr">Good night, sweet dreams. </p>
<p dir="ltr">I love you<br>
Mommy </p>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-56075844296626583792015-10-21T23:21:00.000-07:002015-10-21T23:21:27.075-07:0010.21.15 - So ProudMy Dearest Conor,<br />
<br />
Hey Monkey. Been a while since I have written you a letter, things have been just a tab bit crazy. Work is really keeping me on my toes, plus this new organization I have started, top that off with everything wrapped around you that keeps me busy. I wonder how I manage to still stand some days, but staying busy is so much easier than the alternative.<br />
<br />
Since my last letter to you, you started a new school. From all reports and seeing your own actions when we head to school in the morning, you seem to really like it. I guess we will find out next week just how much you like it when I attend your parent teacher conferences.<br />
<br />
Since my last letter to you, you lost another therapist. Felicia chose to pursue another line of work. I have interviewed 3 and decided on 2 and they should be starting the pairing next week. Mandi is of course still part of your team, sorry kid, you are stuck with that one! :)<br />
<br />
Since my last letter to you, I attempted a gluten-free way of eating with you. I didn't see a lot of changes, except for in my bank account, but when you got sick and were unable to keep anything down I had no choice but to give you whatever you could keep down and that just happened to be regular crackers and pretzels. After that, I kept you off the GF way for about 2 weeks in which it was brought to my attention that your focus was off again. So maybe this GF thing could be helping w/ your focus. IDK. It was decided that I was going to try the GF again in November, but Monkey, I will be honest with you, it is soooo expensive and you don't eat 1/2 the food I give you and you end up throwing it away. It's like crumpling up money and tossing it in the trash. Will just have to see how things go. I can tell you that you did NOT like any of the GF foods. None of it!<br />
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Since my last letter to you, you started and completed season 4 of Bambino Buddy Baseball. This season for some reason was a bit rougher than last, IDK if it was all the other changes in your routine (starting new school, losing therapist, GF way of eating, etc) or what, but you had your good days and you had your bad days. But overall, you continued to make progress and that is all that matters to me. Coach Matt came back to coach, you got to play with Jayen again and meet some new friends too. An unexpected bonus that came out of this season was Coach Matt's wife, Nicole ended up taking control of the PA system and did an amazing job of announcing the entire season. I made her an award for her efforts as well. She is quite the character.<br />
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Since my last letter to you, you have found this new way to accentuate your verbal sounds. We call it "duck lips" but whatever helps you, I don't care what it looks like or what we call it. It is helping you to verbally say so many things, including "Mom". Soon baby.... I will hear you say this soon. Once that happens, it won't be long till I hear "I love you Mom". Fingers crossed.<br />
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Well, I need to wrap this letter up, need to go post in mommy's blog now. Read some blog posts from someone last night and it kind of inspired me to get back in here. I am sorry it has been so long since my last letter, I will try really hard to make sure I get in here more.<br />
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Proud of you Monkey. You have made so much progress over the last several months, keep up the good work baby. I love you.<br />
<br />
All My Love, Forever.<br />
Mom<br />
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<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5109778952500961265.post-60674690076610856922015-07-04T18:06:00.001-07:002015-07-04T18:06:02.469-07:0007.04.15 - Days Like This SUCK! My Dearest Conor,<br />
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Hi Baby.... I wish I had pictures to post of you watching fireworks. I wish I was able to see the look on your face like I saw when we were at Disneyland. You loved the fireworks and all the colors, your face lit up even brighter than the sky. But yet again, on this 4th of July (just like last year) it just worked out that it is your weekend with your father and I won't have the opportunity to experience that with you.<br />
<br />
It's times like this that not only do I feel sad for not being able to experience these things with you, but also the bitterness towards your father that manages to creep up on me again for him putting us in this situation. Been a little over 2 years now and I honestly don't know if that bitterness will ever go away but I do everything I can to not show you that bitterness and I will continue to hold it all in. Holidays that needs to be shared now, weekends that I am without you, makes it so much harder. BUT......... It is what it is, there is no going back and we move forward with what we have. You and me Kiddo.<br />
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I hope you are having fun with your father and your Great Grandma today. I know you love playing in the play pool, climbing on the swingset that Great Grandma bought for you and your cousin, playing with your sticker mountain. I know you are going to see your Grandma and Grandpa Thompson too and love that you are able to have such an amazing relationship with them. You know Baby, not many kids are as lucky as you are. When some mommies and daddies go their separate ways, sometimes they don't get to see all the people in their family. Not you though. You are a very special little boy and you are soooo incredibly loved.<br />
<br />
The love a parent has for their kids is indescribable. The love I have for you (and your sister) is what keeps me going and reminds me every day to take another breathe. I know in my heart, one of these days, your sister will come home. Just as I know in my heart, one of these days, you will talk, you will tell me you love me, you will even tell me to shut up (and I can't wait for that moment), one of these days you will tell me everything that you have been trying to tell me with your eyes for the last 3 years.....<br />
<br />
Conor I vow to you to make sure that you have the best life, the best childhood, the best opportunities that I can possibly give you. You see me struggle sometimes, but do understand. You may see me cry sometimes, but you don't yet understand those kinds of emotions (which at times I am grateful for). But no matter what, no matter hard things get, or how much sleep I lose, I will always love you and I will always fight to make sure you have everything you need to succeed, now and in the future.<br />
<br />
I love you baby. Happy 4th of July.<br />
<br />
All My Love, Forever.<br />
Mom<br />
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-83938643067347838302015-06-10T15:57:00.000-07:002015-07-04T15:57:48.412-07:0006.10.15 - California Vacation 2015My Dearest Conor,<br />
<br />
Hi Baby! Ohhh we had soo much fun in California. Original intent over a year ago was for lots of friends and family to join us, to celebrate my 40th birthday, but it ended up being a small group of you, me, Mandi and Content. Our little group has soo much fun!<br />
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You got to visit w/ Jessie and Buzz from Toy Story</div>
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You had a blast on the Merry-Go-Round at California Adventures</div>
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Content, Mandi, you and me on the tram headed to Day3 at Disneyland </div>
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You and Content watching the light/firework show at California Adventures</div>
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You loved The World Of Color show at California Adventures </div>
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You were sooo excited to see Woody from Toy Story. </div>
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We got lucky. Went to see Mickey Mouse at his house in Toon Town, but he wasn't there.</div>
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We did catch him as we were leaving California Adventures though!</div>
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Waiting was not your strong suit. This was you waiting for the World of Color show. </div>
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Memorial Day weekend..... Proved to be a lot of people. That plus was the first weekend of</div>
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the Diamond Celebration (60th Anniversary of Disneyland) </div>
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Hi mom! This was our first day at Disneyland. You still didn't quite know where we were going. </div>
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Content, Me, Mandi and of course you as we walked into the Disneyland Park. </div>
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We even got to visit with our friend Shannon from Autism Live! Stopped by the studio to check it out</div>
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and she ended up doing an interview! Was awesome to have lunch w/ her and Kelby</div>
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Here is the interview Shannon did while we were visiting California. </div>
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Another picture of us on Day 1, on the tram, heading to Disneyland. You were sooo curious....</div>
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Mandi took you on Splash Mountain at California Adventure. This was probably your least favorite ride, but you still seemed to have fun!</div>
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You waiting for World of Conor. You were soo tired.</div>
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You got to visit with Donald Duck too! </div>
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Here you are with Jessie from Toy Story, before Buzz came out.</div>
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You and Mandi on one of the many ride we took you on. </div>
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Yeah.... You tuckerd out for about an hour. Sooo glad we had gotten you that stroller.</div>
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HHMMM... You sure did sleep a lot! LOL This was you and Mandi.</div>
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You trying to sleep as you waiting for World of Color, but too much going on. </div>
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Mandi here readying your favorite book "Chicka Chicka Boom Boom"</div>
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We attempted to take you to the beach on our last day. Each day prior was drizzle filled and overcast, so we waiting as long as we could to get you some beach time in the hopes the weather would cooperate. We did take you to Long Beach (which I will never go back to - it was a crappy beach) but it was still over cast and a bit windy, making it a little cold. I am definitely going to make plans to take you back again before school starts though to get you some REAL beach time at a REAL beach! </div>
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Oh this was fun! You really liked the Cars Ride at California Adventure. Can't say any of us liked getting stuck on the ride though. Luckily we probably only sat there for about 10 minutes. </div>
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You saw Pluto too! </div>
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Cousin love! Was so awesome for her to spend time w/ you. </div>
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More pics of you and Woody. High Five! </div>
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No fear.... That should be your nickname! This was you and Mandi on the ferris wheel at California Adventure. You definitely are not afraid of heights! </div>
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Yeah..... THIS was a memorable dinner....... You threw up all over the table, the seat, yourself, and me! Was good times right there. Even better? We had used your spare set of clothes to change you when you got off the water ride w/ Mandi. I had to take you out of the restaurant and walk about a block to the cloests bathroom to clean you up, and then I had to go find and buy you new clothes. All while Mandi and Content finished (or tried to finish eating a rather expensive meal) as they watched the staff clean up your mess. Ehhhh it happens. I just appreciate Mandi and Content being such good troopers during that fiasco. </div>
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Pluto signing your autograph book. </div>
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You loved the fireworks too. I can't wait to take you to see fireworks on 4th of July!!!!</div>
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Content literally picked you up for both of the shows so you could see better.</div>
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She is like Superman, but a woman! :) LOL </div>
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Yes Monkey. We had soo much much! I can't wait to take you back to the beach and back to Disneyland! </div>
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I love you baby. </div>
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All My Love, Forever.</div>
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Mom</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-32705461500275024752015-04-15T14:51:00.000-07:002015-07-04T14:52:05.666-07:0004.15.15 - Your Major League Baseball Debut My Dearest Conor,<br />
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Hi Baby! Ohhhhh what an experience you just had. Got a text from our friend Amy who used to work for Autism Speaks and she asked if you would be interested in throwing out the first pitch at the Diamondbacks game during Autism Awareness Day....... You honestly thing I would have told her "no"? :) 6 weeks later and after a little practice, you did it!!! I was sooo proud of you monkey. You have family and friends in the stands cheering you on, you had all your therapists on their field supporting you. It was a magic moment. You have come sooo far Conor. I am beyond proud of you Baby.<br />
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Here is the video I put together of your special day. Along with some photos below it. So proud!<br />
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I love you baby. </div>
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All My Love, Forever.</div>
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Mom</div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-18405664687747403312015-03-01T16:30:00.004-08:002015-03-01T16:30:49.740-08:0003.01.15 - Sign It - Speak It - Push a Button... I just want to know you love me. <span style="font-family: Verdana, sans-serif;">My Dearest Conor,</span><br />
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<span style="font-family: Verdana, sans-serif;">Hi again. Been 2 months since my last letter. You are keeping me pretty busy these days Conor! About to get busier this week too when you start Buddy Baseball again, but we will get through it together, like we do everything else. :) </span><br />
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<span style="font-family: Verdana, sans-serif;">I just wanted to write to you and tell you about a class I took this past Friday. It was a class on communication devices and the different apps that could be used to help people like you communicate. I spent 7 hours in an itty bitty little room with a bunch of other kick ass autism parents, and I gotta tell you Conor, it was a great class! Usually when I am sitting in an itty bitty room like that for 7 hours, it's for traffic school. This class was sooo much better than traffic school! :) </span><br />
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<span style="font-family: Verdana, sans-serif;">First of all.... The woman who instructed the class is the mother of a 17 year old boy named Kreed (whom you met for the first time last night). I learned a lot and was very motivated when I got home, so much so that I have spent the last few days off an on reprograming your iPad and adding some new buttons. Erin had a lot of great examples and videos to back up her examples of her son as he used his device. Kreed is 17 and only started using his device in last 5 or 6 years I believe. Today is like a pro at it! </span><br />
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<tr><td class="tr-caption" style="text-align: center;"><span style="font-family: Verdana, sans-serif;">Kreed and Conor - 02/28/2015</span></td></tr>
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<span style="font-family: Verdana, sans-serif;">Second........ Besides the fact that learning the device and getting used to it is difficult at times, I also learned the hardest part about implementing a communication device program is getting EVERYONE on board. I have learned this over the past year with various people in your life, but even with all the data taken and all the studies, some people still think that communication devices HINDER those still learning to speak. There are some people who no matter what you say to them, or what proof you show them, will never fully "buy-in" to the benefits of a communication device. I myself am 1000% on board. I have seen what it has done for you over the past year, I have seen what it has done for your communication skills. Hell..... just yesterday while we were driving in the car back from Tucson, you were was able to tell me that you saw McDonald's sign on the side of the road and that you wanted french fries and nuggets. You did this all with your communication device. Conor that is HUGE!!! I wanted to pull over and do a happy dance, but I refrained. I was afraid someone would have called and reported a crazy woman dancing on the side of the road. :) But seriously Conor, HOW would I have known you wanted to eat french fries and nuggets without being able to tell me? Since you can't verbalize that to me (YET), with the use of your device you knew how to communicate with me. You knew how to do that because of the training we were provided by Nick and Lindsay. </span><br />
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<span style="font-family: Verdana, sans-serif;">So here's the deal..... This is what I have learned and continue to learn. There are two kinds of people. People who buy in to the use of communication devices and people who don't. I am in the "people who do buy in" group. Erin gave many examples in the class on Friday, but one has stuck in my head and just won't leave. Kreed is 17 years old and only started using a device to communicate a few years ago. IMAGINE all the things he has ever wanted to say over the past several years that he was unable to say because he did not have the tools to do so. I personally could not imagine going through life just staring at everyone and everything, and not have the means to communicate my thoughts, feelings, wants, and needs. Not have any way to tell someone I was in pain, or didn't like the slop that they kept feeding me over and over again. </span><br />
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<span style="font-family: Verdana, sans-serif;">Conor, let me just say this. YOU ARE MY HERO. You deal with sooo much on a daily basis, and sure you have a melt down and a tantrum there, but you still chug on. There is sooo much that we are trying to shove into that little brain of yours in such as short amount of time, I understand why you get frustrated. I just hope you realize, years from now when you are reading this letter, that I pushed because I love you and I pushed because this is just such a crucial time in your development. If I didn't push, I feel I would not be doing my job as your mother. </span><br />
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<span style="font-family: Verdana, sans-serif;">Myself, along with all your therapists, are trying teaching you how to communicate in every possible way we can think of. Of course, every single day, every waking hour of every single day, we are trying to teach you how to speak using your spoken word. But... we also work on teaching you sign language skills as well as teaching you how to communicate using your TouchChat app and iPad. Eventually, when you get better with your writing skills and reading and writing, we will teach you how to communicate using the alphabet and writing utensils as well. You have a ways to go before we get there, but show more and more progress every day. </span><br />
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<span style="font-family: Verdana, sans-serif;">Conor, I am not going to lie to you.... of course I want you to speak. Of course I want to hear your voice. I want to hear you annoy me by repeating everything over and over again. I want you to ask me "why" a million times. I want to have an argument with you. I honestly 100% feel in my heart that YOU WILL SPEAK, ONE DAY. My head is telling me that I need to be a realist and that there is still the possibility that it may never happen. I need to prepare you for that, I need to prepare me for that. THAT is why I push. THAT is why I am doing everything possible to make sure that you have all the tools you need to learn to communicate. </span><br />
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<span style="font-family: Verdana, sans-serif;">I refuse to wait till you are 10 or 12 or 15 before I say "okay, he is never going to talk maybe we should look into getting him a communication device". Just because at the age of 4 when you started using your device, and now at 5 when we push you to use it more, I am by no means going to allow you to use your device as a crutch to NOT use your verbal communication skills. But...... this is me and this is my choice as your mother, to make sure you have these tools. Conor, I NEED you to be able to tell me your head hurts even if it's by using sign language. I NEED to know that you need a drink of water, even if it's by using your device. Those things I need to know. But there is one thing I would give practically anything to hear you SAY, and that is "I LOVE YOU". But, for now, I will accept sign language. I will accept hearing it on your device. </span><br />
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<tr><td class="tr-caption" style="text-align: center;">Conor signing "I Love You"</td></tr>
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<span style="font-family: Verdana, sans-serif;">One more thing before I sign off on this letter. There are some people that may not like me because I do push so much. There are some people who may not agree with my way of thinking in regards to this device -vs- speech -vs- sign language or any of my other choices regarding your therapy for that matter. There are also some people who I had expected more from in regards to "being on board", but I have learned recently that I can't expect to change the thought process of everyone on the planet. I have been told on numerous occasions that my expectations are rather high. Well..... when it comes to my kids, you bet your ass my expectations are high, as are my expectations for those around my kids. I understand that no one is going to fight as hard for you, your services, your therapy, your education, your everything more than I will. Conor, I will fight for you till my last breath. </span><br />
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<span style="font-family: Verdana, sans-serif;">Look, like I said, I know you are going through a lot right now, but in time, this will all be worth it. I am soooo incredibly proud of you and of all that you have accomplished. I wish you would be a little less ninja like, but that is who you are and I love you for it no matter what. ;) </span><span style="font-family: Verdana, sans-serif;">You keep up the good work you are doing Monkey. I will keep pushing to give you the tools you need to do it. It will pay off.... </span><br />
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<span style="font-family: Verdana, sans-serif;">I love you baby. </span><br />
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<span style="font-family: Verdana, sans-serif;">All My Love, Forever.</span><br />
<span style="font-family: Verdana, sans-serif;">Mom</span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-80845529613942058012015-01-02T11:56:00.000-08:002015-01-02T12:18:37.296-08:0001.02.15 - Happy new year <div class="separator" style="clear: both; text-align: left;">
My Dearest Conor,</div>
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Well, we did it baby! We survived another year. :) Happy New Year!!! 10 years ago, I never could have imagined that staying home, alone, with a kid on New Years would have brought me happiness, but it did. Your quirkiness makes me smile and your sense of style warms my heart. This is how you chose to dress up for the night and ring in the new year. And boy did you ring it in with "style". LOL </div>
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I guess Grandpa Clyde giving you a good long nap during the day on New Years Eve worked out in our favor, as you actually stayed up till midnight to watch the ball drop. Although you could have cared less and just kept pressing your "Blue Clues" button on your iPad, it meant something to me to be able to ring in the new year with you. </div>
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Of course, the first day of 2015 was no different than most nights of 2014, as you ended up in my bed in the middle of the night, again. I tried and tried to get you to go back to sleep and you wouldn't have it. Finally, I asked you if you wanted to hear your songs on the phone. You responded with your lazy way of saying "yes" with your nod and your blink, which BTW reminds me so much of an old TV show called "I Dream of Jeanie". Don't worry, I don't expect you to have any clue what I am talking about. :) </div>
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As I put your songs on and tried to keep the covers on you (because it was freezing), you started to doze. Then, song #3 came on and you rolled over and looked at me. I asked you if you wanted me to sing again, and again, you nodded and blinked. Song #3 on your playlist is called <a href="http://youtu.be/sQ9j3dhZ6ys" target="_blank">"You and Me Against the World"</a> and it's by a woman named Helen Reddy. It's an older song, but one of my favorites. I have been signing this song to you were first born, and 9x out of 10 you are asleep either before it started or by the end of it. If only I knew back then, just how true the words of the song would actually become.... But regardless, it is one of our songs and always will be. </div>
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What amazed me though Conor was, at 3am when I was trying to get you to go back to sleep, was your immense desire to hear this song. What else amazed me was your almost constant eye contact with me the entire time I was singing this song to you. It was a very personal moment, and I just had to take this picture. Now, Conor... I think we both know by now that by no means can I carry a tune, nor do I pretend to. But the simple fact that you laid there, during the entire song, making eye contact (except for when you were dozing off and eyes were starting to close) and listened to me (attempt) to sing the song. I was moved. Those tears that you saw leaking from my eye, those were happy tears. Those were tears of joy and tears of hope. Just like the little child says at the end of the song, "I love you Mommy" and the Mommy responds "I love you to Baby". I am hopeful that 2015 will be the year I get to actually hear those words from you. </div>
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But, you know what though, Conor? If you don't say it this year, or next or even ever.... That's okay. I know you feel it and I know you want to say it. You show me that you love me each and every single day, and just as I have been saying for years "actions speak louder than words". </div>
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Conor, you proved that very statement to me this morning when I was leaving for work. You sat there on the floor, between Halei and myself, and I told you that I loved you. You responded by signing "I love you" completely independently. No prompting..... No help...... Just 100% Conor, sitting in the middle of the floor, responding to my verbal "I love you" with you signing "I love you". You just signed "I love you" like you had been signing your entire life. Again, actions speak louder than words. </div>
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So baby, as we start off 2015 on that note, I couldn't be more happy. We have soo much to do this year. Lot of changes are in store for us, and I can't wait to look back 1 year from now and reflect on all the progress you will have made. </div>
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I love you baby. Happy New Year!</div>
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All My Love, Forever.</div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5109778952500961265.post-20856925263142277562014-12-19T06:00:00.000-08:002014-12-19T08:04:36.497-08:0012.19.14 - Happy 5th BirthdayMy Dearest Conor,<br />
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Happy Birthday!!! I can't believe you are 5 years old today. Wasn't it just yesterday that I walked into the hospital as a "soon-to-be-mom"? From the very first minute I laid eyes on you, I knew my life was going to change forever. I had dreamed and hoped and tried for so long for you. I honestly never thought that day would come.<br />
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Not going to lie, it was a rough pregnancy and a scary birth, but it was all worth it in the end to finally hold you in my arms. To look into your eyes, to feel you wrap your little fingers around mine, to listen to that little whimper of a cry. I never knew this kind of love existed. Being your mom is the most amazing feeling in the world.<br />
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Over the past 5 years, you have grown so much. You were an infant, a baby, a toddler and now you have become a "little boy". As you grow older, you will continue to grow into a young man, a teenager, a young adult, an adult and then with any luck an old man. During these coming years, not only will you grow physically, you will grown mentally and emotionally. How that will all play out is still yet to be determined and you and I will experience that part together. </div>
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You have some struggles that some other kids don't. But then again, you have some talents that other kids don't too. Some of your struggles right now include some sensory issues. For example, you can't stand to have things on your hands and you are constantly wiping them on the table, your shirt or even my shirt. You don't like to stand in water or have water on the bottom of your shoes, yet you love the tub and you love to swim. Your biggest struggle right now is your lack of speech. You can "say" a couple words, but that is only with some prompting. You can sign more words than you can speak and you are very good at communicating with your iPad. You are working with an amazing speech therapist named Lindsay (whom you love and she loves you) and with her help, your hard work, and the help of the rest of your therapy team, I have no doubt that one of these days you will be speaking fluently and giving me attitude. </div>
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Conor, it's you and me kid. You are stuck with me for the long haul. I made a promise to you when you were born, and I am sure you don't remember this WINK WINK, but I made you a promise and told you that I would do everything in my power to protect you and make sure that you have everything you need to become whomever it is you want to become. You want to be a baseball player? I will do what I can to help you. You want to become a ballerina? I will do whatever I can to help you. You want to become an master physicist? Well, I think you might be on your own for that one Bud. I barely graduated high school! :)</div>
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Starting today though, I am going to starting writing you letters. Not sure how frequent these letters will come, as being a single mom to you does take a lot of my time. In addition to working a full time job, my volunteer work, etc., but rest assured, I will be writing you letters. My hope is that years from now, you will be able to look back on these letters that I have written and learn something. Learn something about me, as your mom and maybe even learn something about you, as a man. I would hope that you learn from things I did right, as well as learn from things I did wrong so you know not to repeat my mistakes. Life is full of lessons, my son. That would be lesson #1. :) </div>
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Sometimes things don't workout the way you planned. Your father and I created you, out of love, with a goal in mind to be a family, but that didn't quite work out as I had planned. Conor when you start to grow up and start to figure YOUR life out and what YOU want out of it, you will find yourself creating a little "Life Road Map" like I did. One day, you will find yourself traveling along that map, on cruise control, just as happy as can be. Then all of a sudden, you come to an intersection and you are faced with a couple different choices. Just remember this son, if you stay true to yourself and true to your dreams, no matter what direction you take at that intersection, it will lead you to your destination. If you turn right, it might take you a little longer than if you had turned left. If you turn left, it might take 10x longer than if you had gone straight. You never know what lies ahead of you Conor. All you can do, is like I said, be true to yourself and your dreams. You will find your destination. </div>
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Kinda deep for a 5 year old huh? Yeah, I know... but I know it will be a long time before you read this. I am confident that when you do read this, you will be of an age where it will mean something to you. I hope that when you read this, you are at a place in your life that if you have questions or anything you want to say to me, that you feel can come to me. I also hope that I am still around for you to ask me those questions. Life has a funny way of getting in the way of your road map. Road blocks and speed bumps will appear out of nowhere. Honey, by the time you are interested in reading these letters, your road map will have so many twists and turns that it will literally look like a bowl of spaghetti. But, if you believe in yourself, like I believe in you, then you will find your way. </div>
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Oh Conor. You are only 5 and you have already achieved do much and yet their is still sooo much more to accomplish. Pretty much for the last 3 years, you have had non-stop therapy. Developmental, Occupational, Speech, Habilitation, ABA and then add on pre-school to that. Did you have a choice in the matter? No, this was something I chose for you, as your mom, because that is my job. My job is to protect you and to give you all the tools you need to become whomever it is you want to become. Sure, I still have managed (don't ask me how) to try and make a normal life for you outside of therapy and school. Getting you into sports such as baseball and soccer. Giving you opportunities to make friends (Mateo, Isaiah and Caleb and others) as well as even meet your future wife, Violet (WINK WINK) I hope you will see in the years to come, just how much I love you and just how much I would do anything for you.</div>
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I KNOW I am not perfect. I KNOW I do not have all the answers, but I can PROMISE YOU this, my son. I am doing the very best I can for you and I as long as I am breathing, I will continue to do my best. I am soo incredibly proud of you and of the "little boy" you have grown to be. I look forward to watching you continue to grow, and become whomever it is you want to become. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhedJAgpLZ37_Uc7jhlkT6GPfAxWIWwzYAW9plYrtxXzOX1JTOGz6vQQyclze65q0av4f8osWgbI2PIa_JxwlB7MxkY-EMwxaYtrPm1MBBjN9JW4Mx44XM144RaaHSr8oX2Ld0KrOWcty0N/s1600/10857903_10202300327869070_2959473747833513304_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhedJAgpLZ37_Uc7jhlkT6GPfAxWIWwzYAW9plYrtxXzOX1JTOGz6vQQyclze65q0av4f8osWgbI2PIa_JxwlB7MxkY-EMwxaYtrPm1MBBjN9JW4Mx44XM144RaaHSr8oX2Ld0KrOWcty0N/s1600/10857903_10202300327869070_2959473747833513304_n.jpg" height="320" width="320" /></a></div>
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I love you baby. Happy 5th Birthday!</div>
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All My Love, Forever. </div>
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Mom</div>
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